• NY TIMES SCRUTINY AND OPWDD RESPONSE CONTINUE
  • NYSACRA UPDATES STRATEGIC PLAN
  • HEALTH PASSPORT
  • MEDICAID RENEWAL PROCESS SIMPLIFIED
  • APRIL IS AUTISM AWARENESS MONTH

 

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NYSACRA News & Views 04-04-2011
Issue No. 144-60 April 04, 2011

 

In This Issue

Join the Direct Support Professional Alliance of New York State

NY TIMES SCRUTINY AND OPWDD RESPONSE CONTINUE

NYSACRA UPDATES STRATEGIC PLAN

HEALTH PASSPORT

MEDICAID RENEWAL PROCESS SIMPLIFIED

APRIL IS AUTISM AWARENESS MONTH


 

Join the Direct Support Professional Alliance of New York State
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 NYSACRA Calendar

 


 

 Executive Positions

 


 

 Action Center
Greetings NYSACRA Members!
  • NY TIMES SCRUTINY AND OPWDD RESPONSE CONTINUE
  • In the last month, our field has seen a number of communications going back and forth, starting with the New York Times newspaper article on March 13, 2011 about instances of disturbing abuse that took place in state-operated residences; in turn, this article was followed by a number of statements from OPWDD. Here we attempt to outline the most recent items for you.

    In a March 26, 2011 editorial, the New York Times declared that the group home system of care for people with developmental disabilities must choose better employees, train them more, and aggressively investigate all instances of neglect and abuse, up to and including reporting crimes to police authorities. They used the expression that the group home system had "gone to rot." The editorial, unfortunately, made no distinctions between state-operated group homes and those run by private, not-for-profit providers.

    On March 29, Acting Commissioner Courtney Burke issued a "Dear Families and Colleagues" email that acknowledged the media coverage and reaffirmed her commitment to the safety and welfare of people with disabilities as OPWDD's highest priority, promising future communications on proactive steps the agency will take, and offering a new email address established for the purpose of offering an additional communication resource to anyone who wants to send comments, concerns or ideas This e-mail address is being protected from spambots. You need JavaScript enabled to view it v.

    The same day, Sheila McBain, Deputy Commissioner, Division of Quality Management, issued a memo to Executive Directors of Voluntary Agencies regarding OPWDD's efforts to evaluate and strengthen incident management principles and practices across the state; she restated their commitment to respecting the dignity of each person in their care and their focused refresher training for all existing state staff (direct support, clinical, and supervisory) on those topics, plus leadership visits to all state operated homes. Her memo encourages voluntary providers to do the same, making leadership visits to programs and using the Abuse Prevention Refresher Training curriculum soon to be available on their website.

    On March 30, 2011, another article by journalist Danny Hakim appeared in the New York Times entitled "Cuomo to Tighten Requirements for Workers in Homes for Disabled." The article reviews some of the steps that OPWDD will take to improve employee hiring practices and training, plus increase oversight of incidents, yet states that these actions are unlikely to satisfy parents and advocates who have witnessed widespread mismanagement and abuse. The article does include a reference to homes operated by "nonprofit service providers."

    OPWDD has a Press Release from March 30 on its website describing specific measures announced by Acting Commissioner Burke regarding a new Incident Management Team, new hiring standards for direct support employees, refresher training on respect, dignity, and professional ethics as essential to prevention of abuse, a new disciplinary action review panel, and leadership visits to state-operated residences.

    As new messages are shared with the field, NYSACRA will continue to report them to you.

  • NYSACRA UPDATES STRATEGIC PLAN
  • NYSACRA is updating its current strategic plan that we've used in the period 2006 - 2011. A steering committee is in place to guide the board and our preparation for a new plan. We invited our members to use an online survey to evaluate some aspects of what we do and provide suggestions for the future; we have 46 responses. We are going to conduct a number of deeper interviews with members around the region and other stakeholders, such as state agencies, parent and self advocacy organizations, and non-members. Some will take place during the Annual Conference (April 12 - 15), where we will also ask quick questions of those in attendance. Based on all the feedback we have collected, we will shape the plan this summer, and then share with you at the annual Leadership Conference in November/December. If you have some ideas you would like to share, please contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

  • HEALTH PASSPORT
  • Successful patient care can often be hampered by having inadequate personal and health information between the person with disabilities, the Direct Support Professional, families, the provider agency, and the healthcare provider. Elizabeth Perkins, Ph.D., RNMH., Health Coordinator & Research Assistant Professor at the Florida Center for Inclusive Communities, University of South Florida in Tampa, has developed the "Health Passport". This document, available in English and Spanish, contains basic and essential health information as well as personal characterizations of the patient with disabilities. Dr. Perkins would be delighted to hear any feedback and comments you have about using this form. She can be reached at (813) 974-7076 or by email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

  • MEDICAID RENEWAL PROCESS SIMPLIFIED
  • Effective March 1, 2011 local Departments of Social Services implemented a simplified Medicaid renewal process which eliminates the requirement to provide documentation of income, resources and residency changes for certain individuals at the time of Medicaid renewal. This change applies to HCBS Waiver enrolled individuals who are receiving Community Coverage with Community-Based Long-Term Care. This is a change which the New York State Office for People With Developmental Disabilities (OPWDD) successfully advocated for as a means of facilitating the process to maintain Medicaid eligibility for individuals with developmental disabilities. For more information from Gary O'Loughlin Director at OPWDD, Division of Fiscal & Administrative Solutions, click here.

  • APRIL IS AUTISM AWARENESS MONTH
  • "With autism spectrum disorders (ASDs) affecting nearly one percent of children in the United States, autism is an urgent public health issue with a profound impact on millions of Americans. World Autism Awareness Day is an opportunity to recognize the contributions of individuals with ASDs and rededicate ourselves to the cause of understanding and responding to autism." So begins President Obama's proclamation naming April 2 as World Autism Awareness Day. He is joined by Secretary of Health and Human Services Sebelius in his proclamation. Additional information and materials about April as Autism Awareness Month are available from an OPWDD flyer and for other resources about autism, a new website is available at www.autismnow.org.

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